How to support individuals with a chronic illness...
Navigating chronic illness and mental well-being...
During Mental Health Awareness Week, Don't Carry It Alone are reflecting on the connection between chronic illness and mental well-being.
We understand that coping with a long-term chronic condition can significantly impact one's mental health. Don't Carry It Alone seek to raise much-needed awareness of the realities of living with a chronic illness. Below are a number of 'triggers', that can result in mental health struggles.
Journey to diagnosis: The journey to diagnosis for many can be incredibly long and arduous. From enduring numerous doctor visits to undergoing various tests and consultations, the uncertainty and frustration during this process can take a toll on mental health. The emotional weight of having a condition that is undiagnosed or misunderstood by medical professionals can lead to feelings of isolation and anxiety.
No diagnosis at all: Have you heard of the term 'medical gaslighting'? As the Don't Carry It Alone network has grown, we have sadly heard many experiences of this. Where individuals are made to feel that their symptoms are exaggerated or not real, in a place where they are seeking support and answers from professionals. Being invalidated in this way can erode self-confidence and exacerbate mental health struggles.
Longstanding stigmas: Stigma surrounding chronic illness, particularly in settings like the workplace, can create additional challenges. Many individuals face a lack of understanding from colleagues or employers, which can impact job security, career progression, and overall well-being. The fear of being judged or viewed as unreliable due to their health can lead to heightened stress and anxiety. Managing symptoms while striving to excel at work can feel like an uphill battle. The need for accommodations or flexibility may not always be met with understanding or support, adding another layer of stress.
How can we support individuals with a chronic illness?
Simply listen. By definition, a chronic illness is often long-term. Individuals who have the chronic illness know this, so we are not looking for answers. We are not looking for 'get better soon'; sometimes we just need someone to listen and empathise, without judgement.
Be cautious with your advice. Regardless of intent, comments like 'It could be worse' are really not helpful.
Be an ally! Learn about the condition your family member/friend/colleague has. Do your research, engage in support groups (like DCIA!) and heighten your level of understanding and empathy.
Be flexible. Flexibility is key when it comes to supporting an individual with chronic illness. As an employer or colleague, flexibility allows for higher performance around symptoms or flare ups. Flexibility as a family member or friend - don't be mad if they have to cancel last minute!